Organisations
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Action For BPAN
info: Action For BPAN -
Action for Pulmonary Fibrosis
info: Action for Pulmonary Fibrosis -
Action Medical Research
info: Action Medical Research -
Advocacy for Neuroacanthocytosis Patients
info: Advocacy for Neuroacanthocytosis Patients -
Alex, The Leukodystrophy Charity
info: Alex, The Leukodystrophy Charity -
Alport UK and the Alport Syndrome Alliance
info: Alport UK and the Alport Syndrome Alliance -
Association for Multiple Endocrine Neoplasia Disorders (AMEND)
info: Association for Multiple Endocrine Neoplasia Disorders (AMEND) -
Association of Medical Research Charities
info: Association of Medical Research Charities -
ataxia-aware
info: ataxia-aware -
Beacon for Rare Diseases
info: Beacon for Rare Diseases -
brainstrust
info: brainstrust -
Breaking Down Barriers
info: Breaking Down Barriers -
Cambridge Rare DiseaseNetwork (CamRARE)
info: Cambridge Rare DiseaseNetwork (CamRARE) -
Cancer Research UK
info: Cancer Research UK -
CASK Research Foundation
info: CASK Research Foundation -
CGD Society
info: CGD Society -
CHAMP1 UK
info: CHAMP1 UK -
CHD5 ALLIANCE CIC
info: CHD5 ALLIANCE CIC -
Contact for Families with Disabled Children
info: Contact for Families with Disabled Children -
CPA Research Foundation
info: CPA Research Foundation -
CSF Leak Association
info: CSF Leak Association -
Cure DHDDS
info: Cure DHDDS -
Cure EB
info: Cure EB -
Cure NF2 Foundation UK & Europe
info: Cure NF2 Foundation UK & Europe -
Cystinosis Foundation UK
info: Cystinosis Foundation UK -
DEBRA
info: DEBRA -
Dravet Syndrome UK
info: Dravet Syndrome UK -
Fahr Beyond
info: Fahr Beyond -
Fanconi Hope
info: Fanconi Hope -
FOP Friends
info: FOP Friends -
Gene People
info: Gene People -
Genetic Alliance UK
info: Genetic Alliance UK -
George Pantziarka TP53 Trust
info: George Pantziarka TP53 Trust -
GOSH charity
info: GOSH charity -
Hereditary Brain Aneurysm Support (HBA Support)
info: Hereditary Brain Aneurysm Support (HBA Support) -
HOPE for Epilepsy
info: HOPE for Epilepsy -
Kidney Research UK
info: Kidney Research UK -
LAM Action
info: LAM Action -
LifeArc
info: LifeArc -
Medical Research Foundation (MRF)
info: Medical Research Foundation (MRF) -
Medics for Rare Disease
info: Medics for Rare Disease -
Metabolic Support
info: Metabolic Support -
Multiple System Atrophy Trust
info: Multiple System Atrophy Trust -
MVA Society
info: MVA Society -
Niemann-Pick UK
info: Niemann-Pick UK -
Northern Ireland Rare Disease Partnership (NIRDP)
info: Northern Ireland Rare Disease Partnership (NIRDP) -
Prader Willi Syndrome Association UK
info: Prader Willi Syndrome Association UK -
PSC Support
info: PSC Support -
PSPA
info: PSPA -
PTEN UK and Ireland Patient Group
info: PTEN UK and Ireland Patient Group -
RareMinds
info: RareMinds -
Relapsing Polychondritis Awareness and Support
info: Relapsing Polychondritis Awareness and Support -
Retina UK
info: Retina UK -
Reverse Rett
info: Reverse Rett -
Ring20 Research and Support UK CIO
info: Ring20 Research and Support UK CIO -
SarcoidosisUK
info: SarcoidosisUK -
Sarcoma UK
info: Sarcoma UK -
SWAN UK
info: SWAN UK -
The Children’s Hyperinsulinism Charity
info: The Children’s Hyperinsulinism Charity -
The Hereditary Spastic Paraplegia Support Group (UK)
info: The Hereditary Spastic Paraplegia Support Group (UK) -
The Leber’s Hereditary Optic Neuropathy Society
info: The Leber’s Hereditary Optic Neuropathy Society -
The Lily Foundation
info: The Lily Foundation -
The Tuberous Sclerosis Association (TSA)
info: The Tuberous Sclerosis Association (TSA) -
The Voltage Gated Calcium Channel Collective (VGCCC)
info: The Voltage Gated Calcium Channel Collective (VGCCC) -
Timothy Syndrome Alliance (TSA)
info: Timothy Syndrome Alliance (TSA) -
UK Rare Epilepsies Together (UKRET)
info: UK Rare Epilepsies Together (UKRET) -
Unique
info: Unique -
Usher Kids UK
info: Usher Kids UK -
Wales Gene Park
info: Wales Gene Park -
Wellcome
info: Wellcome -
Wolfram Syndrome UK
info: Wolfram Syndrome UK