Alport UK supports people living with Alport Syndrome which impacts hearing, kidneys and eyes.
Alport UK also runs the Alport Syndrome Alliance a global network advancing treatments and knowledge. The international network is made up of patients, clinicians, laboratory scientists and representatives from pharma and biotech. www.alportsyndromealliance.org workshops@alportsyndromealliance.org

Alport UK and the Alport Syndrome Alliance
Category
- Charities and not-for-profit
Functions
- Communications
- Patient and Public Involvement and Engagement (PPIE)
- Registry development





