Alport UK and the Alport Syndrome Alliance

Alport UK supports people living with Alport Syndrome which impacts hearing, kidneys and eyes.
Alport UK also runs the Alport Syndrome Alliance a global network advancing treatments and knowledge. The international network is made up of patients, clinicians, laboratory scientists and representatives from pharma and biotech. www.alportsyndromealliance.org workshops@alportsyndromealliance.org

Category

  • Charities and not-for-profit

Functions

  • Communications
  • Patient and Public Involvement and Engagement (PPIE)
  • Registry development

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