Charitable organisation providing education and support services to families affected by multiple endocrine neoplasia (MEN) and inherited paraganglioma (PGL) syndromes, and adrenocortical cancer (ACC). In addition, we encourage research into the conditions through engagement with researchers to provide the patient voice.
Association for Multiple Endocrine Neoplasia Disorders (AMEND)
Category
- Charities and not-for-profit
Functions
- Advocacy and policy influencing
- Patient and Public Involvement and Engagement (PPIE)
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