This category includes organisations delivering healthcare, e.g. NHS Trusts.
- Diagnosis of rare conditions
- Delivering treatment and care to people living with a rare disease
- Provide input into or carry out research.
- Provide clinical voice to the rare disease research ecosystem, based on expertise and experience.
- Provide expert opinion to drive strategy of research landscape.
- Influencing policy.
- Delivering research, including coordinating and delivering clinical trials
- Building specialist networks of healthcare professionals with expertise in specific rare conditions
- Patient and public involvement and engagement (PPIE) and outreach