Action for BPAN was created by two mothers who’s daughters have been diagnosed with this rare Neuro-degenerative condition. As the UK’s first charity for BPAN we help to fund the vital research for a cure or treatment and give a voice to this rare community of wonderful children and parents.
Action For BPAN
Category
- Charities and not-for-profit
Functions
- Advocacy and policy influencing
- Funding
- Patient and Public Involvement and Engagement (PPIE)
