Alex, The Leukodystrophy Charity

Established in 2004, Alex TLC provides invaluable support and information to people affected by leukodystrophy. There are more than 100 different known types of leukodystrophy, including some so rare they only affect one or two individuals. We are the only charity in the UK that provides support and information to people affected by any of the leukodystrophy conditions worldwide.

Category

  • Charities and not-for-profit

Functions

  • Advocacy and policy influencing
  • Communications
  • Patient and Public Involvement and Engagement (PPIE)

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