PTEN UK and Ireland Patient Group

PTEN UK & Ireland is a patient-led charity supporting people and families affected by PTEN Hamartoma Tumour Syndrome (PHTS). We provide trusted information, peer support, advocacy, education, and resources, while raising awareness, supporting research, and working with healthcare professionals to improve diagnosis, treatment, and lifelong care across the UK and Ireland.

Category

  • Charities and not-for-profit

Functions

  • Advice or consultancy
  • Patient and Public Involvement and Engagement (PPIE)

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