All-Ireland Rare Disease Interdisciplinary Research Network (RAIN)

The All-Ireland Rare Disease Interdisciplinary Research Network (RAiN) brings together a broad range of interdisciplinary professionals and patient representatives across the island of Ireland to advance rare disease research, advocacy and support.

By forging cross-border partnerships with academic institutions, research centres, healthcare services, and governmental bodies, RAiN creates a robust network of expertise and resources. These partnerships address the diverse needs of individuals and families affected by rare diseases, as well as bridge gaps in knowledge and services.

Category

  • Research programmes and networks

Functions

  • Advocacy and policy influencing
  • Education and training
  • Patient and Public Involvement and Engagement (PPIE)

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