Fanconi Hope supports people living with Fanconi Anaemia, a rare lifelimiting and incurable inherited genetic condition. We help increase awarenss amongst medical professionals and the general public and support research to help find a cure. We work closely with European and US partner organisations.
Fanconi Hope
Category
- Charities and not-for-profit
Functions
- Advocacy and policy influencing
- Patient and Public Involvement and Engagement (PPIE)
- Registry development
