Breaking Down Barriers

Breaking Down Barriers is a network of over 70 organisations providing support to people living with rare and genetic conditions. We work together to learn, develop, and share good practice. Promoting equity, diversity and inclusion is at the centre of what we do. Our Experts by Experience Advisory Group help us to understand the lived experiences of people from diverse, marginalised and under-served communities who are affected by rare and genetic conditions. We create safe spaces for learning and collaboration, deliver training, promote inclusive research, and run a community outreach project. We unite and strive for equitable access to services and support for all.