Organisations
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Alport Research Hub
info: Alport Research Hub -
British Paediatric Surveillance Unit (BPSU)
info: British Paediatric Surveillance Unit (BPSU) -
Cell and Gene Therapy Catapult
info: Cell and Gene Therapy Catapult -
Centres of Excellence for Regulatory Science and Innovation (CERCIs)
info: Centres of Excellence for Regulatory Science and Innovation (CERCIs) -
Changing Clinical Practice Through Innovative Trial Designs (CAPTIVATE) Node
info: Changing Clinical Practice Through Innovative Trial Designs (CAPTIVATE) Node -
Early Assessment, Diagnosis and Treatment of Parkinsonism and Related Syndromes (ExPRESS) Node
info: Early Assessment, Diagnosis and Treatment of Parkinsonism and Related Syndromes (ExPRESS) Node -
EMBL’s European Bioinformatics Institute (EMBL-EBI)
info: EMBL’s European Bioinformatics Institute (EMBL-EBI) -
Epigenomics of Rare Disorders (EpiGenRare) Node
info: Epigenomics of Rare Disorders (EpiGenRare) Node -
Genomics England
info: Genomics England -
Innovation hubs for gene therapies
info: Innovation hubs for gene therapies -
King’s Health Partners Rare Disease Network
info: King’s Health Partners Rare Disease Network -
LifeArc Centre for Rare Mitochondrial Diseases
info: LifeArc Centre for Rare Mitochondrial Diseases -
LifeArc Centre for Rare Respiratory Diseases
info: LifeArc Centre for Rare Respiratory Diseases -
LifeArc Translational Centres for Rare Disease
info: LifeArc Translational Centres for Rare Disease -
Mary Lyon Centre
info: Mary Lyon Centre -
Medicines Discovery Catapult
info: Medicines Discovery Catapult -
mTOR Pathway Diseases Node
info: mTOR Pathway Diseases Node -
NIHR Innovation Observatory
info: NIHR Innovation Observatory -
Northern Ireland Rare Disease Clinical and Academic Network
info: Northern Ireland Rare Disease Clinical and Academic Network -
Nucleic Acid Therapy Accelerator
info: Nucleic Acid Therapy Accelerator -
Oxford-Harrington Rare Disease Centre
info: Oxford-Harrington Rare Disease Centre -
Patient Led Research Hub
info: Patient Led Research Hub -
Rare Disease Collaborative Networks (RDCNs)
info: Rare Disease Collaborative Networks (RDCNs) -
Rare Disease Research UK
info: Rare Disease Research UK -
Rare Therapies Launchpad
info: Rare Therapies Launchpad -
RD-IMAG (UK Rare Disease International Mirror and Action Group)
info: RD-IMAG (UK Rare Disease International Mirror and Action Group) -
RECORDER group
info: RECORDER group -
The Renal Ciliopathies National Network (CILIAREN) Node
info: The Renal Ciliopathies National Network (CILIAREN) Node -
Therapeutic Genomics CoRE
info: Therapeutic Genomics CoRE -
UK Platform of Nucleic Acid Therapy for rare disease treatment (UPNAT) Node
info: UK Platform of Nucleic Acid Therapy for rare disease treatment (UPNAT) Node -
West Midlands Secure Data Environment
info: West Midlands Secure Data Environment