Organisations
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All-Ireland Rare Disease Interdisciplinary Research Network (RAIN)
info: All-Ireland Rare Disease Interdisciplinary Research Network (RAIN) -
Beacon for Rare Diseases
info: Beacon for Rare Diseases -
British Paediatric Surveillance Unit (BPSU)
info: British Paediatric Surveillance Unit (BPSU) -
CHD5 ALLIANCE CIC
info: CHD5 ALLIANCE CIC -
Clever Cogs
info: Clever Cogs -
Fahr Beyond
info: Fahr Beyond -
FOP Friends
info: FOP Friends -
King’s Health Partners Rare Disease Network
info: King’s Health Partners Rare Disease Network -
LifeArc Centre for Rare Respiratory Diseases
info: LifeArc Centre for Rare Respiratory Diseases -
Medics for Rare Disease
info: Medics for Rare Disease -
Multiple System Atrophy Trust
info: Multiple System Atrophy Trust -
Prader Willi Syndrome Association UK
info: Prader Willi Syndrome Association UK -
PSPA
info: PSPA -
Rare Disease Research Network
info: Rare Disease Research Network -
The Leber’s Hereditary Optic Neuropathy Society
info: The Leber’s Hereditary Optic Neuropathy Society -
The Tuberous Sclerosis Association (TSA)
info: The Tuberous Sclerosis Association (TSA) -
UK Platform of Nucleic Acid Therapy for rare disease treatment (UPNAT) Node
info: UK Platform of Nucleic Acid Therapy for rare disease treatment (UPNAT) Node -
Usher Kids UK
info: Usher Kids UK