CARDRISS maintains a national register of babies in Scotland with structural, chromosomal, and syndromic congenital conditions meeting EUROCAT inclusion criteria plus other conditions covered by national pregnancy and newborn screening programmes.
Congenital Conditions and Rare Diseases Registration and Information Service for Scotland (CARDRISS)
Category
- Enabling infrastructure
Functions
- Real world data collection
- Registry development
- Research and development
Similar organisations
Northern Ireland Rare Disease and Congenital Abnormality Registry (NIRADCAR)
info: Northern Ireland Rare Disease and Congenital Abnormality Registry (NIRADCAR)
Congenital Anomaly Register and Information Service (CARIS)
info: Congenital Anomaly Register and Information Service (CARIS)
