CARIS provides reliable data on congenital anomalies in Wales which can be used to assess patterns of anomalies, including possible clusters and their causes and to inform the work of health services, including antenatal screening. The Adult Rare Disease Register (ARD) for Wales is managed within the CARIS team. The main purpose of the adult rare disease register is to collate high quality data on rare diseases. The data may then be used by the government, healthcare staff, charity organisations and the public to help improve the services available for patients with rare diseases.
CARIS email: Caris@wales.nhs.uk
ARD email: PHW.ARD@wales.nhs.uk
