This category includes the organisations, programmes and networks that provide the supporting services or infrastructure that is needed for rare disease research to take place.
- Curate health data to provide researchers with access to large scale data, advancing research in rare disease.
- Provide sustainable disease registry services.
- Collect and maintain resources of biological data and samples, made available to researchers.
- Provide services to support delivery of clinical trials, such as state of the art facilities, participant recruitment and expert advice.
- Provide advice and support around funding opportunities and attracting funding.
- Facilitate engagement between research and industry.
