Reverse Rett is a UK patient organisation working to accelerate treatments and improve outcomes for people living with Rett syndrome. We connect families, clinicians, researchers and industry, manage the Rett Registry UK, support research and clinical trial recruitment, and ensure the experiences and priorities of families help shape research, healthcare and future treatments.
Reverse Rett
Category
- Charities and not-for-profit
Functions
- Clinical trial development and participant recruitment
- Patient and Public Involvement and Engagement (PPIE)
- Registry development
