CRELD1 Warriors

CRELD1 Warriors was founded by parents of children diagnosed with a CRELD1 gene mutation, also known as Jeffries-Lakhani Neurodevelopmental Syndrome (JELANS).

As a registered UK charity, our mission is to provide support for families caring for a child with CRELD1 gene mutations, to raise awareness of this extremely rare disease and to support vital medical research to help us find an effe

Category

  • Charities and not-for-profit

Functions

  • Advocacy and policy influencing
  • Patient and Public Involvement and Engagement (PPIE)
  • Research and development

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