Organisations
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Action for Pulmonary Fibrosis
info: Action for Pulmonary Fibrosis -
Advocacy for Neuroacanthocytosis Patients
info: Advocacy for Neuroacanthocytosis Patients -
Alex, The Leukodystrophy Charity
info: Alex, The Leukodystrophy Charity -
All-Ireland Rare Disease Interdisciplinary Research Network (RAIN)
info: All-Ireland Rare Disease Interdisciplinary Research Network (RAIN) -
Association for Multiple Endocrine Neoplasia Disorders (AMEND)
info: Association for Multiple Endocrine Neoplasia Disorders (AMEND) -
Association of British HealthTech Industries
info: Association of British HealthTech Industries -
Association of Medical Research Charities
info: Association of Medical Research Charities -
Association of the British Pharmaceutical Industry
info: Association of the British Pharmaceutical Industry -
BioIndustry Association
info: BioIndustry Association -
Cambridge Rare DiseaseNetwork (CamRARE)
info: Cambridge Rare DiseaseNetwork (CamRARE) -
CHAMP1 UK
info: CHAMP1 UK -
CHD5 ALLIANCE CIC
info: CHD5 ALLIANCE CIC -
CPA Research Foundation
info: CPA Research Foundation -
CSF Leak Association
info: CSF Leak Association -
Cystinosis Foundation UK
info: Cystinosis Foundation UK -
DEBRA
info: DEBRA -
Fahr Beyond
info: Fahr Beyond -
Fanconi Hope
info: Fanconi Hope -
FOP Friends
info: FOP Friends -
Gene People
info: Gene People -
Genetic Alliance UK
info: Genetic Alliance UK -
George Pantziarka TP53 Trust
info: George Pantziarka TP53 Trust -
Hereditary Brain Aneurysm Support (HBA Support)
info: Hereditary Brain Aneurysm Support (HBA Support) -
HOPE for Epilepsy
info: HOPE for Epilepsy -
Kidney Research UK
info: Kidney Research UK -
King’s Health Partners Rare Disease Network
info: King’s Health Partners Rare Disease Network -
Mediaplanet
info: Mediaplanet -
MVA Society
info: MVA Society -
Niemann-Pick UK
info: Niemann-Pick UK -
Northern Ireland Rare Disease Partnership (NIRDP)
info: Northern Ireland Rare Disease Partnership (NIRDP) -
Oxford-Harrington Rare Disease Centre
info: Oxford-Harrington Rare Disease Centre -
PSPA
info: PSPA -
Rare Therapies Launchpad
info: Rare Therapies Launchpad -
RD-IMAG (UK Rare Disease International Mirror and Action Group)
info: RD-IMAG (UK Rare Disease International Mirror and Action Group) -
Relapsing Polychondritis Awareness and Support
info: Relapsing Polychondritis Awareness and Support -
Ring20 Research and Support UK CIO
info: Ring20 Research and Support UK CIO -
SarcoidosisUK
info: SarcoidosisUK -
The Leber’s Hereditary Optic Neuropathy Society
info: The Leber’s Hereditary Optic Neuropathy Society -
The Lily Foundation
info: The Lily Foundation -
The Tuberous Sclerosis Association (TSA)
info: The Tuberous Sclerosis Association (TSA) -
The Voltage Gated Calcium Channel Collective (VGCCC)
info: The Voltage Gated Calcium Channel Collective (VGCCC) -
Timothy Syndrome Alliance (TSA)
info: Timothy Syndrome Alliance (TSA) -
UK Rare Epilepsies Together (UKRET)
info: UK Rare Epilepsies Together (UKRET) -
Unique
info: Unique -
Usher Kids UK
info: Usher Kids UK -
White Sutton Syndrome UK
info: White Sutton Syndrome UK -
Wolfram Syndrome UK
info: Wolfram Syndrome UK